From the Scientific Committee Chair
Dear Colleagues and Friends,
It is with great pleasure that we invite you to join other lymphedema health professionals, scientists and consumers from around the world for the 2016 Asia Pacific Lymphology Conference to be held in May, 2016 in Darwin, Australia. The theme for the conference ‘New Networks – New Solutions’ is based on the unique opportunity we have to bring together the 11th Australasian Lymphology Association Conference and the 6th International Lymphoedema Framework Conference. The scientific program is designed to stimulate the development of new partnerships and enrich prior multidisciplinary collaborations, thus improving the way we prevent, diagnose and manage lymphatic diseases and disorders.
The planned presentations and workshops to be delivered by our keynote and invited speakers will cover a range of topics, including molecular and cellular understanding of the lymphatic system, advances in diagnostic methods, and understanding the lived experiences of those with lymphatic disease. Our two internationally-renowned keynote speakers (Prof Maryls Witte and Prof Terence Ryan) bring to the conference a rich history in the lymphology setting, and have a deep understanding of the impact of lymphatic disease on the developed and developing world. Their contribution to this International Conference will ensure we learn from the past and present in a way that will facilitate rapid advances and the identification of new solutions for the future.
The conference is being held in Darwin – the Northern Territory’s capital city and the gateway to South-East Asia. Darwin is a beautiful city in its own right, worthy of setting time aside to explore. It sits on the edge of a gorgeous harbour, is a modern sophisticated city while being steeped in history, and despite enduring many hardships over the years, remains a friendly, laid-back city that you’ll want to visit again. While in the Top End, you’ll also want to take the opportunity to experience some of the most unique places in the world, including the World Heritage listed Kakadu and Litchfield National Parks, both of which display some of the most spectacular fauna and flora Australia has to offer.
We all look forward to seeing you in the Top End in May!
Kind regards
Sandi Hayes
(On behalf of the Scientific Committee)
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Vor ein paar Jahre bin ich an Krebs erkrankt, bedingt durch meine Wertheim OP, Bestrahlung und Afterloading habe ich Lymphödeme bekommen, für mich sehr überraschend da ein paar Jahre dazwischen lagen, ich wusste das etwas nicht stimmt aber leider konnten unzählige Ärzte nicht helfen. Hier ist es auch so, wie in viele viele andere Länder auch, dass Lymphatische Erkrankungen erstens nicht wirklich ernst genommen werden und zweitens das kaum ein Arzt darüber Bescheid weiß, wie den auch, wenn in den Lehrbüchern so gut wie NICHTS steht.
Mein Bestreben ist alles zu tun was in meiner Macht steht um dafür zu sorgen das jeder der betroffen ist weiß was er/ sie tun kann um sein Leben wieder so gestalten zu können wie er/sie das möchte. . Ich suche und suche immer weiter nach alternativ Möglichkeiten um meinen Leben so normal wie möglich zu gestalten. Die Empfehlungen die ich gebe sind bei mir durchaus wirksam und ich erziele gute Erfolge und behalte meine Lebensqualität. Mein Blog ist kein Ersatz für eine Ärztliche Betreuung und ich empfehle jeden mit seinem Arzt über Therapie Möglichkeiten etc. zu sprechen. Ich kann nur anregen und durch meine eigene, persönliche Erfahrung eventuell einen weg aufzeigen.
Seit 2009 beschäftige ich mich weit über das übliche hinaus mit Lymphödeme. Nicht nur die „Diagnose“ interessiert mich, sondern ebenso was für einen Effekt es hat auf unser Sozialleben und unser Selbstwertgefühl. Ich habe viel Zeit und Geld investiert in andere Länder zu reisen um alternativen kennenzulernen, ich war bei Internationale Firmen als Gast um zu sehen welche Lösungen geboten werden, habe fast jeden Lymphologischen Kongress besucht um mich weiter zu bilden und einige Projekte als Freelancer machen können. Wie ihr sieht ist das weitaus mehr als nur ein Blog, es müssen sich grundliegende Dinge verändern um uns alle das zu geben was wir verdienen, Respekt, Empathie und das Bewusstsein das wir nichts Vorübergehendes haben, sondern das dieses ein Teil unseres Lebens ist und auch bleibt.
After being diagnosed with Cancer and going through treatments, Wertheim operation, radiation therapy and afterloading I was suddenly hit by Lymphedema. Totally surprising since nobody even gave me a hint that this could happen. Running from one doctor to the other trying to find out what is wrong with me and why my body was changing so quickly, once again being in the situation of not having control of anything. This made me so angry that I started studying like crazy, I wanted to find out why we are left alone, why doctors don’t have a clue (sorry, most doctors) about Lymphedema and the consequences in all aspects of our lives.
Sadly, I had to realize that hardly anyone knows anything about it. I started my quest to find alternatives in treatments, I traveled around the world investing my time and money, fortunate enough to spend time in companies specialized in Lymphedema treatment to learn all that I could and can. I hardly miss any Lymphatic congress, listening to the internationally known doctors, discussing what is important for us as patients. I have done some freelance work for the companies that I believe in and had the chance to work with a wonderful company in New Jersey. I have tested alternatives and I am still searching and studying because it is my quest to change things for all affected by this, not only our physical wellbeing but most importantly the impact that it has on our daily life. It’s not something that’s going to go away, it’s with us until the end and the minimum that we can expect is being taken seriously, respect and empathy for our situation and the importance for all of us that have the possibilities to change things for the better. There is so much work to do, and I am not going to give up. As you can see this is more than a blog.
If you find something interesting on Lymphfantastic but you are having problems with the German, then just send me a message and I will be happy to translate that for you, my native language is English so that is no problem. Have a great day and looking forward to hearing from you soon.
Bless you all, Monica
lymphfantastic 